JULY 5 - 8, 2017

Surround yourself with people who get it, learn from experts, and form lifelong bonds. This year’s event will be held at the spectacular Hilton Orlando resort, with two temperature-controlled pools, lazy river, whirlpool, a winding water slide, tennis, volleyball, and basketball courts, an inexpensive trolley ride away from International Drive‘s shopping, attractions, and dining experiences, including SeaWorld and Universal Orlando Resort, and a 7-mile shuttle ride away from DisneyWorldEpcot, and other area attractions! For more information, including registration, see the General Information tab below.

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Saturday, July 8 • 9:00am - 9:45am
How To Advocate For Your Medically-Complicated Child

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Talking to physicians and other medical professionals can sometimes be overwhelming for parents of medically-complicated children. This session will discuss the new movement toward patient-centered care and how you can best advocate for your child in the medical environment.

avatar for Sue Yudovin, RN, MN, CPNP

Sue Yudovin, RN, MN, CPNP

Retired, Coordinator Pediatric Epilepsy Surgery Program, UCLA
Sue Yudovin RN, MN, CPNP is a retired pediatric nurse practitioner who spent most of her career in the Division of Pediatric Neurology at the David Geffen, UCLA, School of Medicine. She has worked with thousands of families with children who have drug-resistant seizures and have required... Read More →
avatar for Patricia Dean

Patricia Dean

Clinical Coordinator, Comprehensive Epilepsy Program, Nicklaus Children's Hospital
Patricia Dean received her BSN from Downstate Medical Center and her MSN from the University of Miami. Ms. Dean has been involved in every aspect of nursing care of the pediatric epilepsy patient. She is presently the Clinical Coordinator of the Comprehensive Epilepsy Program at Miami... Read More →
avatar for Monika Jones

Monika Jones

Visionary Founder and CEO, The Brain Recovery Project: Childhood Epilepsy Surgery Foundation
After her first son, Henry, was born with total hemimegalencephaly and required a modified lateral hemispherotomy as an infant, then revision at age two, then a third surgery to convert to a true anatomical hemispherectomy at age three, Monika and her husband Brad Jones founded The... Read More →

Saturday July 8, 2017 9:00am - 9:45am
Florida 2

Attendees (18)