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JULY 5 - 8, 2017

Surround yourself with people who get it, learn from experts, and form lifelong bonds. This year’s event will be held at the spectacular Hilton Orlando resort, with two temperature-controlled pools, lazy river, whirlpool, a winding water slide, tennis, volleyball, and basketball courts, an inexpensive trolley ride away from International Drive‘s shopping, attractions, and dining experiences, including SeaWorld and Universal Orlando Resort, and a 7-mile shuttle ride away from DisneyWorldEpcot, and other area attractions! For more information, including registration, see the General Information tab below.

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Thursday, July 6 • 3:00pm - 4:00pm
How To Advocate For Your Medically-Complicated Child

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Talking to physicians and other medical professionals can sometimes be overwhelming for parents of medically-complicated children. This session will discuss the new movement toward patient-centered care and how you can best advocate for your child in the medical environment.

avatar for Sue Yudovin, RN, MN, CPNP

Sue Yudovin, RN, MN, CPNP

Sue Yudovin RN, MN, CPNP is a retired pediatric nurse practitioner who spent most of her career in the Division of Pediatric Neurology at the David Geffen, UCLA, School of Medicine. She has worked with thousands of families with children who have drug-resistant seizures and have required epilepsy surgery. | | Sue Yudovin completed her master’s degree and nurse practitioner certificate at UCLA Graduate School of Nursing.
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemispheric Specialization, and Neuro-rehabilitation After Cerebral Hemispherectomy. In additional to her work with The Brain Recovery Project, she is an active member of the Council of Parent and Attorney... Read More →

Thursday July 6, 2017 3:00pm - 4:00pm
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