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PEDIATRIC EPILEPSY SURGERY CONFERENCE
AND FAMILY REUNION
JULY 5 - 8, 2017
HILTON ORLANDO • ORLANDO, FLORIDA

Surround yourself with people who get it, learn from experts, and form lifelong bonds. This year’s event will be held at the spectacular Hilton Orlando resort, with two temperature-controlled pools, lazy river, whirlpool, a winding water slide, tennis, volleyball, and basketball courts, an inexpensive trolley ride away from International Drive‘s shopping, attractions, and dining experiences, including SeaWorld and Universal Orlando Resort, and a 7-mile shuttle ride away from DisneyWorldEpcot, and other area attractions! For more information, including registration, see the General Information tab below.

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Wednesday, July 5
 

4:00pm

Check In
Check in, grab your badge, and pick up an agenda. 

Wednesday July 5, 2017 4:00pm - 6:00pm
Registration Window Near Florida Ballrooms

5:00pm

Welcome Session and Pizza Party!
Don't miss this first event! Enjoy a delicious buffet of pizza and salads, including cash bar. This is the perfect time to greet old friends and make new ones. Teens and young adults will be seated together in a special "meet and greet" section.

Wednesday July 5, 2017 5:00pm - 7:00pm
Florida Ballroom 4
 
Thursday, July 6
 

7:30am

Breakfast Buffet
Thursday July 6, 2017 7:30am - 8:45am
Orange Ballroom

8:30am

Gadget Expo and Resource Fair begins
25 exhibitors join us to share gadgets, information, services, and products with you. Be sure to swing by!

Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Thursday July 6, 2017 8:30am - 4:00pm
Florida 5 - 7

8:30am

Kid Camp Opens
Thursday July 6, 2017 8:30am - 4:30pm
Key West

9:00am

Opening Session and Keynote Address: Celebrating Our Differences
Our keynote speaker, Peter Binkley, is a designer of mechanical assisted devices and an educator for E-NABLE, a non profit that provides free 3D printed prosthetic devices for upper limb amputees. He'll share what he's learned building a prototype for a 3D-printed hand exo-glove for children with hemiparesis, and remind us that we should celebrate our differences.

See his recent talk at TedX Dubai here.
 

Moderators
JD

Jennifer Dempsey

Realtor, Vangie Berry Signature Realty

Speakers
avatar for Peter Binkley

Peter Binkley

Designer, Open-Sourced Prosthetics, e-Nabling the Future
Peter Binkley is one of the e-NABLE community‘s most active designers. Together with his son, Peregrine Hawthorne, they designed the Talon hand, the Ody hand, and the Flextensor. He also collaborated with other e-NABLE on the design of the Raptor hand. | | At the behest of The B... Read More →


Thursday July 6, 2017 9:00am - 9:45am
Florida Ballroom 4

9:00am

READING ASSESSMENTS
Thursday July 6, 2017 9:00am - 5:00pm
Key Largo C & D

10:00am

Brain 101
What is a corticospinal tract? What are the various functions of different parts of the brain? What are the connections that everyone talks about? What do all these medical terms mean? This introductory session will give you a quick rundown of the various concepts and terms you'll need to know in many subsequent sessions of this conference. A great primer for new families. Includes a quick recap of some prior conference sessions. Presented by parents, for parents, in a non-intimidating environment.

Speakers
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →


Thursday July 6, 2017 10:00am - 11:00am
Florida Ballroom 4

10:00am

Intensive Physical Therapy: TheraSuit Method - An Integrated, Collaborative, Progressive approach to Improving Motor Function in Pediatrics

Therasuit Method Intensive Program (sometimes called TMIP) is an intensive individualized therapy program that accelerates functional progress. The program uses the Therasuit® (a soft canvas suit with bungee-like cords attached) and the Universal Exercise Unit (“Spider Cage”) to allow the child to learn new & correct patterns of movement through strengthening and functional skills practice. The Therasuit Program is ideal for those looking to meet functional goals at an accelerated rate as compared to traditional therapy.

This session introduces parents to TMIP and addresses how it can:
  • Improve independence with activities of daily living (self-care, feeding & dressing)
  • Improve body awareness
  • Improve motor skills
  • Improve balance and coordination

Moderators
JD

Jennifer Dempsey

Realtor, Vangie Berry Signature Realty

Speakers
avatar for Jessica Costa, PT, DPT

Jessica Costa, PT, DPT

Physical Therapist, Johns Hopkins All Children's Hospital


Thursday July 6, 2017 10:00am - 11:00am
Florida 1

10:00am

Assistive Communication Devices and Apps for the Non-Verbal/Limited Verbal Child

Speaking is how we communicate with those around us.  It allows us to interact with other people and influence the world around us to get our needs met.  But for many children, verbal speech is not an option.  These children, often labeled as “non-verbal”, may have plenty that they want to communicate with us, but they are unable to speak the words.  However, every child has the right to communicate and the fact that these children cannot speak should not take that right away from them.

For these children, there is another option.  The term Alternative and Augmentative Communication (AAC) describes any means of communication, aside from traditional speech, that allows someone to use language.  This can include using pictures, gestures, sign language, visual aids, or speech-output devices like computers. 

This session will show you exactly how to try some of these techniques to help a non-verbal child learn to communicate.


Moderators
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →

Speakers
avatar for Carrie Clark

Carrie Clark

Owner, Speech and Language Kids
Carrie Clark, CCC-SLP, is the owner of the online resource Speech and Language Kids. A graduate of Truman State University in Kirksvile, Missouri, Mrs. Clark worked in the Columbia Public Schools in Columbia, Missouri in the 3-5 years program. Although she loved all of the child... Read More →


Thursday July 6, 2017 10:00am - 11:30am
Florida 3

12:00pm

Group Lunch - By Region
Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
JL

Jeffrey Lewis

Teachers aide


Thursday July 6, 2017 12:00pm - 1:15pm
Orange Ballroom

1:30pm

Guardianship and Conservatorship

Every adult is assumed to be capable of making his or her own decisions unless a court determines otherwise. If an adult is incapable of making responsible decisions due to a cognitive disability, the court will appoint a substitute decision maker, often called a "guardian," but in some states called a "conservator" or other term. Guardianship is a legal relationship between a competent adult (the "guardian") and a person who because of incapacity is no longer able to take care of his or her own affairs (the "ward").

This session will introduce attendees to how guardianship or conservatorship is attained for an adult with cognitive disabilities.


Moderators
avatar for Amanda Panos

Amanda Panos

Research Coordinator, Travis Research Institute

Speakers
avatar for Carolyn Sawyer, Esq.

Carolyn Sawyer, Esq.

Founder, Sawyer & Sawyer
Carolyn Sawyer's professional focus is Medicaid planning, social security disability, estate planning, guardianships; trust administration, probate, and special needs trusts. | | Carolyn H. Sawyer was born in Dallas, Texas, and admitted to the Florida Bar in 1994. She is admitted to practice before the Supreme Court of Florida and all Florida courts. She received her B.S. in Physics from Southern Methodist University, her Masters Degree in Physics from Rollins College, and received her J.D. from Stetson University College of Law (J.D. 1994). She is a member of The Florida Bar, the Orange County Bar Association (Estate, Guardianship... Read More →


Thursday July 6, 2017 1:30pm - 2:30pm
Florida 1

1:30pm

Orientation and Mobility Training For Visually Impaired Children and Adults
Orientation and Mobility Specialists provide instruction that can help you develop or re-learn the skills and concepts you need to travel safely and independently within your home and in the community. These are services you can access throughout the lifespan - whether in preschool or school programs, as well as in community-based adult settings.  

This session introduces you to orientation and mobility training and will help you understand how this service can benefit you or your child.

Moderators
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →

Speakers
CB

Catherine Bacik, MA, COMS

Certified Orientation and Mobility Specialist, Lighthouse Central Florida
Catherine Bacik is a Certified Orientation and Mobility Specialist (COMS) at Lighthouse Central Florida in Orlando. She has a Masters degree in Orientation and Mobility for Adults from Western Michigan University. Working in the field of Blind Rehabilitation her specialty is... Read More →


Thursday July 6, 2017 1:30pm - 2:30pm
Florida 3

1:30pm

Autism And Epilepsy

The relationship of autism spectrum disorders (ASD) in children with epilepsy is well known. This session will emphasize early diagnosis of ASD, before it is ASD, and how to recognize the early features of social cognition and the importance of early intervention in epilepsy from a neurodevelopment perspective.  


Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →

Speakers
avatar for Roberto Tuchman, MD

Roberto Tuchman, MD

Chief, Department of Neurology, Nicklaus Children's Hospital
Dr. Tuchman is presently the Chief of the Department of Neurology for the Nicklaus Children's Hospital and the Clinical Professor of Neurology and Psychiatry, Herbert Wertheim College of Medicine, at the Florida International University. He was the Founding Director of the Nickla... Read More →


Thursday July 6, 2017 1:30pm - 3:00pm
Florida Ballroom 4

1:30pm

Kinesiotaping For Hemiparesis
Limited Capacity full
Adding this to your schedule will put you on the waitlist.

This is a hands-on, interactive workshop to teach you how to use kinesiotape to treat wrist, arm, and foot contracture as well as shoulder subluxation.

Please wear comfortable clothing as you will be on the floor for much of this session. You will team up with another attendee and take turns kinesiotaping one another.  If you are only able to use one hand, no worries! Just let the instructor know ahead of time and you will be provided with some extra help. 

There is a $10 fee for this workshop to cover supplies. BRING YOUR OWN YOGA MAT. 

Moderators
Thursday July 6, 2017 1:30pm - 3:30pm
Florida 2

2:30pm

Afternoon Refreshment Break
Need a pick-me-up before your next session? Enjoy coffee, tea, freshly baked cookies, fruit, and potato chips.

Thursday July 6, 2017 2:30pm - 3:30pm
Florida Foyer 2

3:00pm

Special Needs Trusts
Financial planning for families with special needs is difficult under the best of circumstances. As parents of individuals with disabilities, we know that every one of our decisions has long-lasting ramifications that can have a huge impact on the quality of our children’s lives in the future. Our choices today may mean the difference between our children living successfully, with financial independence, and watching them languish on wait lists, fighting to access benefits, services, living options, etc.

This session will provide parents with an overview of special needs trusts, and important legal tool that is crucial for preserving your disabled child's assets and entitlements.

Moderators
Speakers
avatar for Carolyn Sawyer, Esq.

Carolyn Sawyer, Esq.

Founder, Sawyer & Sawyer
Carolyn Sawyer's professional focus is Medicaid planning, social security disability, estate planning, guardianships; trust administration, probate, and special needs trusts. | | Carolyn H. Sawyer was born in Dallas, Texas, and admitted to the Florida Bar in 1994. She is admitted to practice before the Supreme Court of Florida and all Florida courts. She received her B.S. in Physics from Southern Methodist University, her Masters Degree in Physics from Rollins College, and received her J.D. from Stetson University College of Law (J.D. 1994). She is a member of The Florida Bar, the Orange County Bar Association (Estate, Guardianship... Read More →


Thursday July 6, 2017 3:00pm - 4:00pm
Florida 1

3:00pm

Speech Therapy for Dysarthria, Articulation, and Pragmatics
Some children after epilepsy surgery have trouble with various areas of speech, including articulation and pragmatics. This session will provide you with tips and tricks to help your child improve these areas of expressive speech production.

Moderators
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →

Speakers
avatar for Carrie Clark

Carrie Clark

Owner, Speech and Language Kids
Carrie Clark, CCC-SLP, is the owner of the online resource Speech and Language Kids. A graduate of Truman State University in Kirksvile, Missouri, Mrs. Clark worked in the Columbia Public Schools in Columbia, Missouri in the 3-5 years program. Although she loved all of the child... Read More →


Thursday July 6, 2017 3:00pm - 4:15pm
Florida 3

3:45pm

It's Not About the Destination: Preparing for Your Future
This session is intended for young people 14 years old and up and their parents, as they start to think about and answer the question "What do you want to do when you grow up?"
It will help young people and their families start thinking concretely about their future, and start making plans as they prepare for employment and independence. 

Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →

Speakers
avatar for Sarah Reuter

Sarah Reuter

Area 3 Performance Improvement Consultant, Florida Department of Education, Vocational Rehabilitation
Sarah J. Reuter is the Area 3 Performance Improvement Consultant for Vocational | Rehabilitation providing support for 14 counties of Central Florida. Sarah began with | Vocational Rehabilitation in 1997 in Sanford, Florida as a counselor, providing services | for individuals wit... Read More →


Thursday July 6, 2017 3:45pm - 4:30pm
Florida Ballroom 4

4:30pm

Kid Camp Closes
Thursday July 6, 2017 4:30pm - 4:31pm
Key West
 
Friday, July 7
 

7:30am

Breakfast Buffet
Friday July 7, 2017 7:30am - 8:45am
Florida Ballroom 4

8:30am

Kid Camp Opens
Friday July 7, 2017 8:30am - 4:30pm
Key West

9:00am

9:00am

Using Visual Schedules To Promote Independence And Success

Individuals with special needs often have difficulties coping with unstructured time or unexpected events and benefit from increased structure in their lives. The advantages to using a visual schedule with individuals with special needs include:

  • It communicates a concrete message and therefore provides a receptive communication system to increase understanding of what is expected;
  • It helps the individual to learn new things;
  • It decreases misused free time;
  • It helps the individual remain calm and reduces inappropriate behaviors; and
  • It helps the individual to develop accountability and independence.

This session will introduce parents and caregivers to the concept of using visual schedules at home and at school.

 


Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Joanna Couch, M. Ed.

Joanna Couch, M. Ed.

Coordinator, Center for Autism and Related Disabilities - University of Central Florida
Joanna works for the Center for Autism and Related Disabilities at the University of Central Florida. She received her undergraduate degree in Special Education: Varying Exceptionalities and her Master’s in Educational Leadership from the University of South Florida. Joanna currently holds a Florida Professional Teaching Certification for Elementary Education K-6, Middle Grades 5-9, Exceptional Student Education K-12, and Educational Leadership, as well as endorsements in Autism Spectrum Disorders and English for Speakers of Other Languages. Joanna has served as an ESE teacher and assistant principal. As a school leader, she led the AdvancED school accreditation process, facilitated staff development sessions, and facilitated developing, initiating, and monitoring the school improvement plan. Joanna provides training, technical assistance, and consultative supports to individuals, families, schools, and organizations to enhance services, opportunities, and programs for individuals with... Read More →


Friday July 7, 2017 9:00am - 10:15am
Florida 3

9:00am

The ABLE Act
Millions of individuals with disabilities and their families depend on a wide variety of public benefits for income, health care and food and housing assistance. Eligibility for these public benefits (SSI, SNAP, Medicaid) require meeting a means or resource test that limits eligibility to individuals to report more than $2,000 in cash savings, retirement funds and other items of significant value. To remain eligible for these public benefits, an individual must remain poor. For the first time in public policy, the ABLE Act recognizes the extra and significant costs of living with a disability. These include costs, related to raising a child with significant disabilities or a working age adult with disabilities, for accessible housing and transportation, personal assistance services, assistive technology and health care not covered by insurance, Medicaid or Medicare. 

For the first time, eligible individuals and their families will be allowed to establish ABLE savings accounts that will not affect their eligibility for SSI, Medicaid and other public benefits. The legislation explains further that an ABLE account will, with private savings, "secure funding for disability-related expenses on behalf of designated beneficiaries with disabilities that will supplement, but not supplant, benefits provided through private insurance, Medicaid, SSI, the beneficiary's employment and other sources."


Moderators
Speakers
avatar for Christopher Rodriguez

Christopher Rodriguez

Director of Public Policy, National Disability Institute
Chris Rodriguez is the Director of Public Policy for National Disability Institute (NDI). Chris has extensive experience working on behalf of individuals with disabilities both on the state and national levels. Prior to joining NDI, he worked for Michigan Protection & Advocacy Se... Read More →


Friday July 7, 2017 9:00am - 10:15am
Florida 2

9:00am

A Step-By-Step Guide to Individual Education Plans - PT 1
This is an intensive, multi-hour program which will address the nuts and bolts of developing an appropriate IEP for your child.  We will break for lunch at 11:45 and return at 1:30 to finish the sessions.

Please bring a copy of your child's IEP to this session. 

*We recommend that you attend the Brain 101 session on Thursday to familiarize yourself with the different functions of various parts of the brain prior to attending these sessions.

Speakers
avatar for Carrie Clark

Carrie Clark

Owner, Speech and Language Kids
Carrie Clark, CCC-SLP, is the owner of the online resource Speech and Language Kids. A graduate of Truman State University in Kirksvile, Missouri, Mrs. Clark worked in the Columbia Public Schools in Columbia, Missouri in the 3-5 years program. Although she loved all of the child... Read More →
avatar for Jennifer Laviano, JD

Jennifer Laviano, JD

Owner, Jennifer Laviano, Attorney at Law
Ms. Laviano has dedicated her law practice entirely to the representation of children and adolescents with disabilities whose families are in disagreement with their public school districts. Her representation of children with special needs encompasses the full spectrum of Civil Rights advocacy under the IDEA (Individuals with Disabilities Education Act), from attendance at IEP Team meetings and Mediation, to zealous and experienced litigation in Due Process Hearings and Federal Court. | | Ms. Laviano is a regular presenter, both locally and nationally, on the subject of the special legal rights of children with disabilities and their entitlement to receive a Free and Appropriate Public Education. Ms. Laviano is on the Board of Directors of COPAA, the Council of Parent Attorneys and Advocates, which is the leading national voice on special education rights and advocacy. | | Ms. Laviano represents children with special needs throughout the State of Connecticut. Her very popular You Tube channel... Read More →
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Julie Gardner, MA

Julie Gardner, MA

Educational Specialist, Kennedy Krieger Institute
Julie Gardner holds a Masters degree from the University of South Florida in Varying Exceptionalities. She also has a Bachelor of Arts degree from Flagler College in Specific Learning Disabilities and Elementary Education. Julie also has an Advanced Professional Teaching Certif... Read More →
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →


Friday July 7, 2017 9:00am - 10:30am
Florida 5-6

9:00am

READING ASSESSMENTS
Friday July 7, 2017 9:00am - 5:00pm
Key Largo C & D

10:30am

Post-Secondary Education for Adults with Intellectual Disability
Did you know that postsecondary opportunities are available for students with intellectual disabilities to study alongside same-aged peers on a college campus?  Students may take courses, practice social strategies, and learn employability skills while engaging with others in a college environment.  

Moderators
JD

Jennifer Dempsey

Realtor, Vangie Berry Signature Realty

Speakers
avatar for Kathleen Becht, PhD

Kathleen Becht, PhD

Director, Florida Consortium on Inclusive Higher Education
Dr. Kathleen Becht is Director of the Florida Consortium on Inclusive Higher Education. There, she enables educators and families of students with disabilities to strive toward the highest expectations for individuals with intellectual disabilities in postsecondary education. Her... Read More →


Friday July 7, 2017 10:30am - 11:30am
Florida 1

10:30am

All About Siblings
The impact of having a sibling with a disability differs from child to child. Some children are staunch protectors, while others may foster bitterness or resentment at some point in their lives.  This session introduces parents to the different emotions siblings may face in their relationship with their differently-abled brother or sister.

Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Kim Snoeblen, M.A. BCaBA

Kim Snoeblen, M.A. BCaBA

Coordinator of Education and Training Programs, Center for Autism and Related Disabilities - University of Central Florida
Kim received her Master’s in Marriage and Family Therapy from the University of Central Florida and dual Bachelor's degree in Psychology and Education from Rutgers University. She holds a professional teaching certificate and has previously worked as both a regular education and... Read More →


Friday July 7, 2017 10:30am - 11:30am
Florida 2

10:30am

A Step-By-Step Guide to Individual Education Plans - PT 2
This is an intensive, multi-hour program which will address the nuts and bolts of developing an appropriate IEP for your child.  We will break for lunch at 11:45 and return at 1:30 to finish the sessions.

Please bring a copy of your child's IEP to this session. 


*We recommend that you attend the Brain 101 session on Thursday to familiarize yourself with the different functions of various parts of the brain prior to attending these sessions.

Speakers
avatar for Carrie Clark

Carrie Clark

Owner, Speech and Language Kids
Carrie Clark, CCC-SLP, is the owner of the online resource Speech and Language Kids. A graduate of Truman State University in Kirksvile, Missouri, Mrs. Clark worked in the Columbia Public Schools in Columbia, Missouri in the 3-5 years program. Although she loved all of the child... Read More →
avatar for Jennifer Laviano, JD

Jennifer Laviano, JD

Owner, Jennifer Laviano, Attorney at Law
Ms. Laviano has dedicated her law practice entirely to the representation of children and adolescents with disabilities whose families are in disagreement with their public school districts. Her representation of children with special needs encompasses the full spectrum of Civil Rights advocacy under the IDEA (Individuals with Disabilities Education Act), from attendance at IEP Team meetings and Mediation, to zealous and experienced litigation in Due Process Hearings and Federal Court. | | Ms. Laviano is a regular presenter, both locally and nationally, on the subject of the special legal rights of children with disabilities and their entitlement to receive a Free and Appropriate Public Education. Ms. Laviano is on the Board of Directors of COPAA, the Council of Parent Attorneys and Advocates, which is the leading national voice on special education rights and advocacy. | | Ms. Laviano represents children with special needs throughout the State of Connecticut. Her very popular You Tube channel... Read More →
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Julie Gardner, MA

Julie Gardner, MA

Educational Specialist, Kennedy Krieger Institute
Julie Gardner holds a Masters degree from the University of South Florida in Varying Exceptionalities. She also has a Bachelor of Arts degree from Flagler College in Specific Learning Disabilities and Elementary Education. Julie also has an Advanced Professional Teaching Certif... Read More →
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →


Friday July 7, 2017 10:30am - 11:45am
Florida 5-6

10:30am

Everyday Conversation - Improving Your Communication Skills
Initiating conversations and knowing when to speak up in everyday conversation can sometimes be challenging for teens and young adults who have had epilepsy surgery in childhood. This workshop will teach you how to "break the ice", avoid those awkward moments, and understand the "give and take" of social conversation.

Moderators
Speakers
avatar for Amy Fritz-Ocock, Ph.D., CCC-SLP

Amy Fritz-Ocock, Ph.D., CCC-SLP

Coordinator of Education and Training Programs, Center for Autism and Related Disabilities - University of Central Florida
As a licensed and ASHA certified speech-language pathologist since 1999, Amy has extensive experience providing services to individuals with a variety of communication disorders while specializing in ASD. She is certified in the Hanen More Than Words and Talkability programs. Am... Read More →


Friday July 7, 2017 10:30am - 12:00pm
Florida 3

12:00pm

Group Lunch - By Etiology
Sit with families whose children have the same underlying diagnosis as your child. Make new friends and connect with old ones!

Moderators
Speakers

Friday July 7, 2017 12:00pm - 1:15pm
Florida Ballroom 4

1:30pm

Neuropsychological Assessments
Moderators
Speakers
avatar for Susan Crum, PhD

Susan Crum, PhD

Owner, Central Florida Neuropsychology


Friday July 7, 2017 1:30pm - 2:30pm
Florida 1

1:30pm

All About Neurological Music Therapy
Neurological music therapy is based on a neuroscience model of music perception and production and the influence of music on functional changes in nonmusical brain and behavior functions. Music therapy is known to help surivors of stroke recover expressive speech. It can also be used to improve cognitive, sensory and motor dysfunctions due to neurological disorders.

This session will introduce you to music therapy and will help you decide if it is an appropriate intervention for your child.

Moderators
JD

Jennifer Dempsey

Realtor, Vangie Berry Signature Realty

Speakers
avatar for Tamela Ponder

Tamela Ponder

Owner, Joyful Music Therapy
Tamela Ponder, MT-BC - | Neurologic Music Therapist, Executive Director, Founder | Board-certified Music Therapist and member of the American Music Therapy Association, Tamela began serving the special needs community of Central Florida in 2008. She holds a Bachelor's degree in M... Read More →


Friday July 7, 2017 1:30pm - 2:30pm
Florida 2

1:30pm

A Step-By-Step Guide to Individual Education Plans - PT 3
This is an intensive, multi-hour program which will address the nuts and bolts of developing an appropriate IEP for your child.  We will break for lunch at 11:45 and return at 1:30 to finish the sessions.

Please bring a copy of your child's IEP to this session. 

*We recommend that you attend the Brain 101 session on Thursday to familiarize yourself with the different functions of various parts of the brain prior to attending these sessions.

Speakers
avatar for Carrie Clark

Carrie Clark

Owner, Speech and Language Kids
Carrie Clark, CCC-SLP, is the owner of the online resource Speech and Language Kids. A graduate of Truman State University in Kirksvile, Missouri, Mrs. Clark worked in the Columbia Public Schools in Columbia, Missouri in the 3-5 years program. Although she loved all of the child... Read More →
avatar for Jennifer Laviano, JD

Jennifer Laviano, JD

Owner, Jennifer Laviano, Attorney at Law
Ms. Laviano has dedicated her law practice entirely to the representation of children and adolescents with disabilities whose families are in disagreement with their public school districts. Her representation of children with special needs encompasses the full spectrum of Civil Rights advocacy under the IDEA (Individuals with Disabilities Education Act), from attendance at IEP Team meetings and Mediation, to zealous and experienced litigation in Due Process Hearings and Federal Court. | | Ms. Laviano is a regular presenter, both locally and nationally, on the subject of the special legal rights of children with disabilities and their entitlement to receive a Free and Appropriate Public Education. Ms. Laviano is on the Board of Directors of COPAA, the Council of Parent Attorneys and Advocates, which is the leading national voice on special education rights and advocacy. | | Ms. Laviano represents children with special needs throughout the State of Connecticut. Her very popular You Tube channel... Read More →
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Julie Gardner, MA

Julie Gardner, MA

Educational Specialist, Kennedy Krieger Institute
Julie Gardner holds a Masters degree from the University of South Florida in Varying Exceptionalities. She also has a Bachelor of Arts degree from Flagler College in Specific Learning Disabilities and Elementary Education. Julie also has an Advanced Professional Teaching Certif... Read More →
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →


Friday July 7, 2017 1:30pm - 3:00pm
Florida 5-6

1:30pm

Behavior Basics: What is ABA and How Can it Help My Child

Applied Behavior Analysis is the science of changing human behavior.  While many people associate ABA with autism, it is useful for children of all ages.  This presentation will cover how to prevent unwanted behaviors, increase or strengthen desired behaviors, and what to do when all else fails.  If your child has skills that he/she needs to learn (such as increasing independence, self-help skills, social skills, or communication), this seminar is for you!! 



Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Jennifer Cicia, M. Ed.

Jennifer Cicia, M. Ed.

Coordinator of Education and Training Programs, Center for Autism and Related Disabilities - University of Central Florida
Jennifer joined the UCF Center for Autism and Related Disabilities (CARD) in November, 2011. She received a BA in Psychology in 2006 and an M.Ed in Exceptional Education in 2007, both from James Madison University in Harrisonburg, VA. Jennifer started working with children on the autism spectrum in 2003 as an in-home specialist with... Read More →


Friday July 7, 2017 1:30pm - 3:30pm
Florida 3

2:30pm

Afternoon Refreshment Break
Need a pick-me-up before your next session? Enjoy coffee, tea, freshly baked cookies, fruit, and potato chips.

Friday July 7, 2017 2:30pm - 3:30pm
Florida Foyer 2

3:00pm

A Step-By-Step Guide to Individual Education - PT 4
This is an intensive, multi-hour program which will address the nuts and bolts of developing an appropriate IEP for your child.  We will break for lunch at 11:45 and return at 1:30 to finish the sessions.

Please bring a copy of your child's IEP to this session. 

*We recommend that you attend the Brain 101 session on Thursday to familiarize yourself with the different functions of various parts of the brain prior to attending these sessions.

Speakers
avatar for Jennifer Laviano, JD

Jennifer Laviano, JD

Owner, Jennifer Laviano, Attorney at Law
Ms. Laviano has dedicated her law practice entirely to the representation of children and adolescents with disabilities whose families are in disagreement with their public school districts. Her representation of children with special needs encompasses the full spectrum of Civil Rights advocacy under the IDEA (Individuals with Disabilities Education Act), from attendance at IEP Team meetings and Mediation, to zealous and experienced litigation in Due Process Hearings and Federal Court. | | Ms. Laviano is a regular presenter, both locally and nationally, on the subject of the special legal rights of children with disabilities and their entitlement to receive a Free and Appropriate Public Education. Ms. Laviano is on the Board of Directors of COPAA, the Council of Parent Attorneys and Advocates, which is the leading national voice on special education rights and advocacy. | | Ms. Laviano represents children with special needs throughout the State of Connecticut. Her very popular You Tube channel... Read More →
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Julie Gardner, MA

Julie Gardner, MA

Educational Specialist, Kennedy Krieger Institute
Julie Gardner holds a Masters degree from the University of South Florida in Varying Exceptionalities. She also has a Bachelor of Arts degree from Flagler College in Specific Learning Disabilities and Elementary Education. Julie also has an Advanced Professional Teaching Certif... Read More →
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →


Friday July 7, 2017 3:00pm - 4:30pm
Florida 5-6

3:00pm

My Body, My Self - Addressing Challenging Concepts and Situations
Dating, internet safety, and circles of intimacy and relationships are important for everyone to understand. When is it appropriate to hug a stranger? What are the risks associated with finding love online?

This session will help teens and adults understand how to keep themselves and their bodies safe.

Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Kimberly Spence, Ph.D.

Kimberly Spence, Ph.D.

Coordinator, Center for Autism and Related Disabilities - University of Central Florida
Dr. Spence received her undergraduate degree in Secondary English Language Arts Education, her Master's in Varying Exceptionalities, and her Ph.D. in Special Education from the University of Central Florida. Prior to joining CARD, Kim worked within public and private settings as a Teacher and Behavior... Read More →


Friday July 7, 2017 3:00pm - 4:30pm
Florida 1

4:30pm

Kid Camp Closes
Friday July 7, 2017 4:30pm - 4:31pm
Key West
 
Saturday, July 8
 

7:30am

Breakfast Buffet
Saturday July 8, 2017 7:30am - 8:45am
Florida Ballroom 4

8:30am

Kid Camp Opens
Saturday July 8, 2017 8:30am - 4:30pm
Key West

9:00am

How To Advocate For Your Medically-Complicated Child
Talking to physicians and other medical professionals can sometimes be overwhelming for parents of medically-complicated children. This session will discuss the new movement toward patient-centered care and how you can best advocate for your child in the medical environment.

Speakers
avatar for Sue Yudovin, RN, MN, CPNP

Sue Yudovin, RN, MN, CPNP

Retired, Coordinator Pediatric Epilepsy Surgery Program, UCLA
Sue Yudovin RN, MN, CPNP is a retired pediatric nurse practitioner who spent most of her career in the Division of Pediatric Neurology at the David Geffen, UCLA, School of Medicine. She has worked with thousands of families with children who have drug-resistant seizures and have required epilepsy surgery. | | Sue Yudovin completed her... Read More →
avatar for Patricia Dean

Patricia Dean

Clinical Coordinator, Comprehensive Epilepsy Program, Nicklaus Children's Hospital
Patricia Dean received her BSN from Downstate Medical Center and her MSN from the University of Miami. Ms. Dean has been involved in every aspect of nursing care of the pediatric epilepsy patient. She is presently the Clinical Coordinator of the Comprehensive Epilepsy Program at Miami Children's... Read More →
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →


Saturday July 8, 2017 9:00am - 9:45am
Florida 2

9:00am

Financial Planning
Financial planning for families with special needs is difficult under the best of circumstances. As parents of individuals with disabilities, we know that every one of our decisions has long-lasting ramifications that can have a huge impact on the quality of our children’s lives in the future. Our choices today may mean the difference between our children living successfully, with financial independence, and watching them languish on wait lists, fighting to access benefits, services, living options, etc.

This session will introduce you to financial plans and instruments available to you to support your child tomorrow, including life insurance and other financial vehicles.

Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Kyle Len

Kyle Len

Agent, New York Life
| Kyle Len is an agent licensed to sell insurance through New York Life Insurance Company. He is a Registered Representative of and offer securities products & services through NYLIFE Securities LLC, (Member FINRA/SIPC), A Licensed Insurance Agency. Kyle is knowledgeableabout... Read More →


Saturday July 8, 2017 9:00am - 9:50am
Florida 5-6

9:00am

Conductive Education
Conductive education is a comprehensive method of learning by which individuals with neurological and mobility impairment learn to specifically and consciously perform actions that children without such impairment learn through normal life experiences. Children are encouraged to be problem-solvers and develop a self-reliant “orthofunctional” personality that fosters participation, initiative, determination, motivation, independence, and self-sufficiency. This session will introduce you to conductive education method and how it may help your child.

Moderators
avatar for Amanda Panos

Amanda Panos

Research Coordinator, Travis Research Institute

Speakers
VB

Vicky Briley

Director of Special Education and Operations, Conductive Education Center of Colorado
LF

Lauren Frazetto

Exceptional Student Educator, Conductive Education Center of Colorado
KW

Kristina Weiszkaupt

Director of Conductive Education and Educational Services and Trainings, Conductive Education Center of Colorado


Saturday July 8, 2017 9:00am - 10:15am
Florida 1

9:00am

READING ASSESSMENTS
Saturday July 8, 2017 9:00am - 5:00pm
Key Largo C & D

10:00am

MEDICAL PANEL: Epilepsy Surgery Overview
Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures presented, where they are localized in the brain, and the training and experience of the neurosurgeon. 

This session will provide you with an overview of various epilepsy surgeries.

Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Gary Mathern, MD

Gary Mathern, MD

Director, Pediatric Epilepsy Surgery Program, UCLA
Dr. Mathern, pioneer of the lateral hemispherotomy technique, holds the Dr. Alfonsina Q. Davies Endowed Chair for Epilepsy Research in Honor of Paul Crandall, MD at the University of California, Los Angeles where he also serves as the neurosurgical director of pediatric epilepsy surgery program. He is internationally recognized for advancements in epilepsy research. He has published more than 200 peer-reviewed papers and book chapters that address clinical and basic science aspects of pediatric epilepsy surgery, including newer imaging techniques, improving surgical techniques, long-term outcomes and rehabilitation using neuroplasticity. His laboratory research has characterized genomic abnormalities, neuroanatomy and cellular properties in cortical dysplasia, Rasmussen Encephalitis, and other etiologies related to epilepsy surgery in children. Dr. Mathern is the recipient of the William G. Lennox Award for lifetime accomplishments in epilepsy from the American Epilepsy Society. His TEDx talk... Read More →

Speakers
avatar for George Jallo, MD

George Jallo, MD

Medical Director, Institute for Brain Protection Sciences, Johns Hopkins All Children's Hospital
George Jallo, M.D., is medical director of the Johns Hopkins All Children's Hospital for Institute Brain Protection Sciences (IBPS) and clinical practice director of Pediatric Neurosurgery and joined the team in September 2015. This new multidisciplinary institute unites clinicia... Read More →


Saturday July 8, 2017 10:00am - 10:20am
Florida 5-6

10:20am

MEDICAL PANEL: Hydrocephalus After Hemispherectomy And Other Resective Surgeries
Hydrocephalus is a significant concern after hemispherectomy and often other resective surgeries. But why? This session will provide you with an overview of the brain's ventricular system, the Monroe Kellie hypothesis which explains why disrupting the ratio of blood-to-brain-to-cerebrospinal fluid can result in hydrocephalus, where shunts are commonly placed, and difficulties diagnosing hydrocephalus when imaging shows no change in ventricle size but the child is symptomatic, has over-draining issues, and other challenges.  

Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Gary Mathern, MD

Gary Mathern, MD

Director, Pediatric Epilepsy Surgery Program, UCLA
Dr. Mathern, pioneer of the lateral hemispherotomy technique, holds the Dr. Alfonsina Q. Davies Endowed Chair for Epilepsy Research in Honor of Paul Crandall, MD at the University of California, Los Angeles where he also serves as the neurosurgical director of pediatric epilepsy surgery program. He is internationally recognized for advancements in epilepsy research. He has published more than 200 peer-reviewed papers and book chapters that address clinical and basic science aspects of pediatric epilepsy surgery, including newer imaging techniques, improving surgical techniques, long-term outcomes and rehabilitation using neuroplasticity. His laboratory research has characterized genomic abnormalities, neuroanatomy and cellular properties in cortical dysplasia, Rasmussen Encephalitis, and other etiologies related to epilepsy surgery in children. Dr. Mathern is the recipient of the William G. Lennox Award for lifetime accomplishments in epilepsy from the American Epilepsy Society. His TEDx talk... Read More →

Speakers
avatar for Aria Fallah, MD, MSc, FRCSC, FAANS

Aria Fallah, MD, MSc, FRCSC, FAANS

Assistant Professor, Neurosurgery, Mattel Children's Hospital at UCLA
Dr. Aria Fallah is a fellowship trained pediatric neurosurgeon who practices at UCLA Mattel Children’s Hospital and Ronald Reagan UCLA Medical Center. He is an Assistant Professor of Neurosurgery and Pediatrics at the David Geffen School of Medicine at UCLA. He is board certified in Neurosurgery by the Royal College of Physicians and Surgeons. He is a thoughtful and meticulous surgeon specialized in research and treatment of pediatric neurosurgical conditions including medically intractable epilepsy, spasticity and hydrocephalus. He also has special expertise in brain tumors, arachnoid cysts, spinal dysraphism, craniofacial anomalies and other congenital malformations of the developing nervous system. He is a lead collaborator in the Hemispherectomy Outcomes Predictor Scale... Read More →


Saturday July 8, 2017 10:20am - 10:50am
Florida 5-6

10:30am

Self Determination Workshop: Building Your Own Vision Board
People with intellectual and/or developmental developmental disabilities have the same right to self-determination as all people. They must have opportunities and experiences that enable them to exert control in their lives and to advocate on their own behalf.  This workshop will help teens and adults who had brain surgery to stop seizures learn all about self-determination. This workshop includes building your own vision board - a collage that represents some of your goals and aspirations. Your vision board may include answers to:
  • What activities do you want to learn how to do?
  • What hobbies and activities do you already do, but want to continue doing or get better at?
  • What are your career goals? What steps will you have to accomplish along the way to be able to eventually land your dream job? (For example, do you need a particular degree, or will you need to secure an internship?)
  • What are your personal relationship goals? 
This workshop is best for teens and adults who have had brain surgery in childhood to stop seizures. Parents are welcome to attend with their child as well. 

Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers
avatar for Kathy Clinton

Kathy Clinton

Comptroller, http://www.arcflorida.org


Saturday July 8, 2017 10:30am - 11:45am
Florida 1

10:50am

MEDICAL PANEL: When Seizures Return - Reliability of Post-Operative EEGs
Sometimes seizures are too deep to be revealed on scalp EEG after large disconnective or resective procedures, including hemispherectomy. This can result in a false “seizure free” diagnosis. Also, in some cases, seizures can look like they are coming from the healthy hemisphere, but actually have deep ictal onset that on scalp EEG appears to come from the good side. This session will focus on the nuances of reading EEGs after large disconnective/resective procedures.  

Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Gary Mathern, MD

Gary Mathern, MD

Director, Pediatric Epilepsy Surgery Program, UCLA
Dr. Mathern, pioneer of the lateral hemispherotomy technique, holds the Dr. Alfonsina Q. Davies Endowed Chair for Epilepsy Research in Honor of Paul Crandall, MD at the University of California, Los Angeles where he also serves as the neurosurgical director of pediatric epilepsy surgery program. He is internationally recognized for advancements in epilepsy research. He has published more than 200 peer-reviewed papers and book chapters that address clinical and basic science aspects of pediatric epilepsy surgery, including newer imaging techniques, improving surgical techniques, long-term outcomes and rehabilitation using neuroplasticity. His laboratory research has characterized genomic abnormalities, neuroanatomy and cellular properties in cortical dysplasia, Rasmussen Encephalitis, and other etiologies related to epilepsy surgery in children. Dr. Mathern is the recipient of the William G. Lennox Award for lifetime accomplishments in epilepsy from the American Epilepsy Society. His TEDx talk... Read More →

Speakers
avatar for Ki Hyeong Lee, MD

Ki Hyeong Lee, MD

Medical Director, Comprehensive Pediatric Epilepsy Center, Florida Hospital for Children
Dr. Lee serves as the Medical Director of the Comprehensive Pediatric Epilepsy Center at the Walt Disney Pavilion at Florida Hospital for Children. The Epilepsy Center for Kids is one of the largest and most comprehensive programs in the nation, offering patients the most advance... Read More →


Saturday July 8, 2017 10:50am - 11:20am
Florida 5-6

11:20am

MEDICAL PANEL: Difficult Disconnections
Some areas of the brain are difficult to disconnect. This session will focus on which brain conditions make it difficult to secure complete disconnection, how to determine if there are missed connections if seizures return after initial disconnective/resective surgery, and the use of diffusion tensor imaging to map missed connections and its reliability.

Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Gary Mathern, MD

Gary Mathern, MD

Director, Pediatric Epilepsy Surgery Program, UCLA
Dr. Mathern, pioneer of the lateral hemispherotomy technique, holds the Dr. Alfonsina Q. Davies Endowed Chair for Epilepsy Research in Honor of Paul Crandall, MD at the University of California, Los Angeles where he also serves as the neurosurgical director of pediatric epilepsy surgery program. He is internationally recognized for advancements in epilepsy research. He has published more than 200 peer-reviewed papers and book chapters that address clinical and basic science aspects of pediatric epilepsy surgery, including newer imaging techniques, improving surgical techniques, long-term outcomes and rehabilitation using neuroplasticity. His laboratory research has characterized genomic abnormalities, neuroanatomy and cellular properties in cortical dysplasia, Rasmussen Encephalitis, and other etiologies related to epilepsy surgery in children. Dr. Mathern is the recipient of the William G. Lennox Award for lifetime accomplishments in epilepsy from the American Epilepsy Society. His TEDx talk... Read More →

Speakers
avatar for James Baumgartner, MD

James Baumgartner, MD

Surgical Director, Epilepsy, Florida Hospital for Children
James E. Baumgartner, MD is a board-certified pediatric neurosurgeon who specializes in traditional and minimally invasive surgical procedures for children and adolescents who are suffering from epilepsy or seizure-related disorders. He has published numerous peer-reviewed journa... Read More →


Saturday July 8, 2017 11:20am - 11:50am
Florida 5-6

11:50am

MEDICAL PANEL: Q AND A
Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →
avatar for Gary Mathern, MD

Gary Mathern, MD

Director, Pediatric Epilepsy Surgery Program, UCLA
Dr. Mathern, pioneer of the lateral hemispherotomy technique, holds the Dr. Alfonsina Q. Davies Endowed Chair for Epilepsy Research in Honor of Paul Crandall, MD at the University of California, Los Angeles where he also serves as the neurosurgical director of pediatric epilepsy surgery program. He is internationally recognized for advancements in epilepsy research. He has published more than 200 peer-reviewed papers and book chapters that address clinical and basic science aspects of pediatric epilepsy surgery, including newer imaging techniques, improving surgical techniques, long-term outcomes and rehabilitation using neuroplasticity. His laboratory research has characterized genomic abnormalities, neuroanatomy and cellular properties in cortical dysplasia, Rasmussen Encephalitis, and other etiologies related to epilepsy surgery in children. Dr. Mathern is the recipient of the William G. Lennox Award for lifetime accomplishments in epilepsy from the American Epilepsy Society. His TEDx talk... Read More →

Saturday July 8, 2017 11:50am - 12:15pm
Florida 5-6

12:30pm

Group Lunch
Moderators
avatar for Nicole Murray

Nicole Murray

Director of Development, The Brain Recovery Project
Nicole Murray serves as the Sponsorship Chair for the Organizing Committee and is responsible for securing sponsors to support the conference. Nicole is Partnership and Development Lead for The Brain Recovery Project where she develops and manages relationships with corporate and foundation partners. | | Nicole has spent the last 15 years of her career focused... Read More →

Speakers

Saturday July 8, 2017 12:30pm - 1:15pm
Florida Ballroom 4

1:30pm

Brain Circuits: How They Impact Behaviors, Development, and Learning To Read After Epilepsy Surgery
Lucine Uddin will discuss how our brain's neurons, connections, and lobes don't work in isolation. Functions and information are processed by many different areas of the brain that are connected by axons ("white matter") and other structures that form circuits of information exchange. When these circuits are interrupted, whether by seizures or by epilepsy surgery, issues with attention, social cognition, and learning can occur. Understanding how your child's brain circuits have been interrupted will help you advocate for their educational success, as well as help you understand their behaviors and challenges. 

Joanna Christodolou will discuss how, in typically-developing persons, reading is primarily a function of the left hemisphere of the brain within circuits involving the temporal lobe. Reading after hemispherectomy or other resection surgeries which remove the temporal lobe in childhood can be challenging because of interruption of critical brain circuitry. One published research paper shows that only 42% of children after hemispherectomy read appropriately for their age. But what can be done to help these children access literacy? What assessments should be done to determine the child's reading strengths and weaknesses?



Moderators
avatar for Monika Jones, JD

Monika Jones, JD

President, The Brain Recovery Project
Monika Jones serves as Program Chair and is CEO and Board Chair of The Brain Recovery Project: Childhood Epilepsy Surgery Foundation, where she served as the principal investigator for the NIH research conference grant for the 2014 International Workshop on Brain Plasticity, Hemi... Read More →

Speakers
avatar for Joanna Christodolou

Joanna Christodolou

Adjunct Lecturer, Harvard University and MIT
Joanna A. Christodoulou works at the intersection of education and neuroscience. Her program of research, conducted at MIT in the Gabrieli Lab and at MGH Institute of Health Professions, focuses on brain and behavior correlates of development, difficulties, and intervention effects for reading. Goals of this work include 1) informing our understanding of reading challenges regarding how they are defined and conceptualized; 2) investigating effective assessment and identification approaches for struggling readers; 3) exploring and predicting the impact of interventions for readers; and 4) harnessing individual variability to improve educational outcomes. Her work is informed by a clinical role at the Learning Disabilities Program at Boston Children's Hospital. Joanna's research has been supported by organizations including the Spencer Foundation; the Fulbright Foundation; the Mind, Brain, and Behavior Initiative at Harvard; and the National Institutes of Health. She has worked as a reading instructor, taught courses at the undergraduate and graduate levels, and has led professional development workshops for educators and parents internationally. She earned a master's in applied child development from Tufts University, a master's in Mind, Brain, and Education from Harvard Graduate School of Education (HGSE), and an Ed.D. from HGSE. | | Dr. Christodolou is co-author of a... Read More →
avatar for Lucina Uddin, PhD

Lucina Uddin, PhD

Assistant Professor of Psychology, Univesity of Miami
Dr. Lucina Uddin's research focuses on the relationship between brain connectivity and cognition in typical and atypical development. Within a cognitive neuroscience framework, her research combines functional connectivity analyses of resting-state functional magnetic resonance i... Read More →


Saturday July 8, 2017 1:30pm - 3:00pm
Florida 5-6

3:00pm

Life Hacks for Teens and Young Adults
How do you make a sandwich? How do you do the laundry? Share your tips and tricks for daily living for kids and adults with hemiparesis. 

This fun and collaborative session for teens and adults with hemiparesis lets them help chat with their peers about how to overcome some of life's everyday challenges.

Moderators
avatar for Audrey Vernick

Audrey Vernick

Director of Educational Training and Advocacy, The Brain Recovery Project
Audrey Vernick serves as the Director of Educational Training and Advocacy for The Brain Recovery Project and is responsible for coordinating the design, development, and launch of its new Educational Advocate Program which commenced the summer of 2016. Audrey is certified by the Council of Parent and Attorney Advocates in their Special Education Advocate Training (SEAT) program. The year-long SEAT program is the only nationally developed and recognized course that provides participants with training to become a special education advocate. The course is based in part on the SEAT Curriculum developed through a partnership between COPAA and Children's Hospital of Los Angeles (CHLA) University Center for Excellence, University of Southern California, on a three year demonstration grant funded by the U.S . Department of Education in 2005. The grant funded portion of the project ended in 2009, resulting in development of a model curriculum for advocacy training that was vetted through 3 cohorts under the direction of a 10 member National Advisory Board, and several members of the COPAA Training Committee, all of whom are nationally recognized special education advocates and... Read More →

Saturday July 8, 2017 3:00pm - 3:45pm
Florida 2

3:00pm

Orthopedic Surgeries for Hemiparesis
Hemiparesis can cause significant musculoskeletal issues, often requiring surgery. This session will cover the various surgeries to correct hip subluxation, drop foot, and other issues.

Moderators
Speakers
avatar for Raymond Woo, MD

Raymond Woo, MD

Medical Director, Pediatric Orthopedics, Florida Hospital for Children
Dr. Woo is a pediatric orthopaedic surgeon who specializes in spine surgery, scoliosis and congenital orthopaedic issues. He and the physicians at the Florida Center for Pediatric Orthopaedics have been recognized for their outstanding capabilities and offer comprehensive orthopa... Read More →


Saturday July 8, 2017 3:00pm - 4:00pm
Florida 5-6

4:30pm

Kid Camp Closes
Saturday July 8, 2017 4:30pm - 4:31pm
Key West

5:00pm

Closing Banquet
Join Peter Pan, Tinkerbell, and their band of pirates as we enjoy the final evening of the conference together. Full dinner banquet including cash bar.

Saturday July 8, 2017 5:00pm - 7:30pm
Florida Ballroom 4